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May 4th, 2006, 08:05 PM
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Community Care Team Coordinator
 Join Date: Jun 2004
Posts: 1,901
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J has to have her tonsils taken out.
I had mentioned a few months back that J had really large tonsils - found this out when I was zipping her jacket and she started singing very loudly and I had a full shot of these monstrous things in her throat. The ped follewed her and referred us to the ENT. I was so worried that he wouldn't agree that they needed to come out since they weren't obstructing her airway IMO. They were causing major swallowing difficuties however and he agreed - they along with the adenoids need to come out. We've had setbacks with our tube weaning due to the increase in gagging and difficulty swallowing so maybe this will help.
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May 4th, 2006, 08:07 PM
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#2 |
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P2P Supporter:
Join Date: May 2004
Location: S. California
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Re: J has to have her tonsils taken out.
Nancy..i sorrry that J has to have a T&A. I do hope it will help with her swallowing issues.
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May 4th, 2006, 08:33 PM
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#3 |
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Community Host
of Tube Feeding Issues and Adaptive Equipment
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Location: Chicago
Posts: 11,054
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Re: J has to have her tonsils taken out.
I hope that helps! Good luck with the procedure.
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Susan, mom of    Sameer , 3/4/05, happy former spitter   Karuna , 7/6/03, G-button  Main Diagnoses: Hypoxic Ischemic Encephalopathy, Cerebral Palsy, Severe GERD and associated neurogastro issues, Seizure Disorder (type undiagnosed), Laryngomalacia, Vision Impairment Current Meds: Prevacid in Caracream, Levsin, Zantac, Lactulose, Keppra, Neurontin, Zanaflex, Botox Injections, Off Klonopin for now! Visit Karuna at http://www.karuna.agrawalkids.com 
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May 4th, 2006, 09:35 PM
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#4 |
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Community Host
of Adaptive Equipment
P2P Supporter:
Join Date: Feb 2005
Location: Chicago, IL
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Re: J has to have her tonsils taken out.
Glad the ENT agreed with you. I hope it helps!
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Chaney  Mom to 5/31/03 Vaccine-induced encephalopathy since 12/9/04 severe GERD, GJ-tube fed due to dysphagia and sensory aversion, CP (spastic quadriplegia), seizures meds: keppra, robinul, miralax, zantac, neurontin, zelnorm www.jacksonpresleydiamond.com   |
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May 4th, 2006, 09:38 PM
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#5 | |
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P2P Supporter:
Join Date: Dec 2003
Location: Massachusetts
Posts: 6,561
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Re: J has to have her tonsils taken out.
Quote:
OMG Nancy...  I am sorry, for some reason I can pic J doing that... Do you know when she is having this done? Poor J, I hope this does help her... 
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~Christine~ Mom to~
~Brannon~ 13
~Hannah~ 7
~Jakob~5
FTT~Lap Fundo surgery with g-tube on
~4-23-04~ GJ-tube placement 8-16-04~
~Roux-en-Y surgery for the new J-tube on 9-21-04~
~12-21-04 Antro-duodenal Manometry with DX of
Vagal Nerve Damage &
Chronic Intestinal Pseudo-obstruction
resulting in severe hypomtility of stomach & small intestine & Bacterial overgrowth~
~Botox injections in stomach on 11-16-05~
~ Current Meds are Prliosec, Baxtrium, Neurotin & Proplusid (Cisipride)
Please visit Jake at:
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May 4th, 2006, 11:06 PM
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#6 |
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Community Host
Community Host of Children's Respiratory Disorders
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Join Date: Oct 2004
Location: Corpus Christi,Texas
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Re: J has to have her tonsils taken out.
I'm sorry that she has to have the surgery done, I hope that it will help her with her swallowing difficulty.
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Mary, wife of Corbin mommy to: Caedon, "Buddy," healthy, my little man, 10-17-00 Caeley, "Precious," my princess,  12-01-03 rt. CDH, tracheobronchomalacia, trach, vent, reflux, g-j tube...meds: reglan, prilosec, aldactone, Diuril, lasix, albuterol puffs, flovent twice daily, feeds: 30 cal Elicare: am 55ml/hr, pm 25ml/hr, visit Caeley at: www.caringbridge.org/tx/caeley |
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May 4th, 2006, 11:07 PM
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#7 |
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Community Host
of Immune Disorders & Deficiencies, Medical Matters, Preschool Years, and the Elementary Years forums.
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Location: Nebraska
Posts: 9,227
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Re: J has to have her tonsils taken out.
I know we talked already, but just wanted you to know I was thinking of you and J. Hugs..
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Amy, Mom to
Kayla 1/17/96, Epilepsy takes Keppra and Relpax
Noah 2/1/99, Mild Reflux takes Prevacid and Nasonex
Nicholas 12/21/02 , Common Variable Immune Deficiency (CVID), Asthma, Reflux, takes D'Allergy Jr, Nasacort AQ, Bactroban Nasal spray and Miralax daily and other meds prn and gets IVIG every two weeks SubQ at home
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May 4th, 2006, 11:08 PM
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#8 |
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Community Host
of Children's Behavioral Issues and the Elementary School Years
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Join Date: Feb 2005
Location: Texas
Posts: 2,928
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Re: J has to have her tonsils taken out.
Poor J. I hope it helps her.
Connor has had his T&A out and it made a difference for him.
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Melinda- Wife to Dale (Married 10-3-92) Proud Mom to: Sarah Corine (7-24-96) Viral meningitis at 3 mos., ADHD, CAPD (Central Auditory Processing Disorder), seasonal allergies Takes Paxil, Concerta, Zyrtec(as needed)  Charles "Connor" (6-4-01)Reflux, Asthma, Allergy to mold and Oak trees, hypogammaglobulinemia Takes: Septra, Nexium, Pulmicort, Rhinocort, Hydroxizine, allergy shots, saline sinus rinse (Albuterol or Xopenex as needed), |
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May 5th, 2006, 02:57 PM
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#9 |
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P2P Supporter:
Join Date: Apr 2005
Location: Oklahoma
Posts: 4,265
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Re: J has to have her tonsils taken out.
I'm glad that they are removing them and i really hope once they do that she has a better time with her swallowing.
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Jamie   Mother to: Aiden born 02/23/04:  Primary Dx: Pierre Robin Syndrome PEG tube 04/04-10/04 & G-tube 10/04 to present Small Slideshow of Aiden Our Gallery  
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May 5th, 2006, 03:09 PM
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#10 |
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Host Coordinator &
Community Manager
Community Host of the Towne Centre
Join Date: Nov 2003
Posts: 12,545
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Re: J has to have her tonsils taken out.
I know we talked about this the other day. I pray that having them taken out will be very beneifical for J. Do you have a surgery date?
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Jennifer...
Mom to Tyler (10yo Refluxer & DGE)
Prevacid, Zelnorm, Miralax, Singulair,
Allegra, Nasonex, and weekly Allergy shots
Community Manager
Host Coordinator & Community Host
If you need assistance,help with the forums,or have questions please contact the community care team.
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May 5th, 2006, 06:06 PM
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#11 |
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Community Host
of the Welcoming Corner, the Entertainment Corner and Infancy & Toddlerhood forums.
Join Date: May 2004
Posts: 7,566
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Re: J has to have her tonsils taken out.
Nancy
I am sorry that J has to have her both of them removed.. I do pray that once removed that it will make it easier for her to swallow..
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Sherry
MAYHost/Co-host of Welcoming Corner / Entertainment /Infant & toddler Asthma & Allergy Awareness, MS Awareness, Speech & Hearing Awareness |
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May 5th, 2006, 09:39 PM
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#12 |
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Community Care Team Coordinator
Join Date: Jun 2004
Posts: 1,901
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Re: J has to have her tonsils taken out.
Thanks everyone - we don't have the date yet, have to wait for the pre-approval first. I was told however we are looking at it happening in June. I'll definetly let you all know when it is scheduled to happen.
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May 8th, 2006, 12:38 PM
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#13 |
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Community Care Team Coordinator
Join Date: Jun 2004
Posts: 1,901
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Re: J has to have her tonsils taken out.
Well, we just scheduled J's surgery. She will be having it on May 26th.
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May 8th, 2006, 12:50 PM
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#14 |
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Community Host
of Immune Disorders & Deficiencies, Medical Matters, Preschool Years, and the Elementary Years forums.
P2P Supporter:
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Location: Nebraska
Posts: 9,227
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Re: J has to have her tonsils taken out.
I am glad you got the date and it isn't too far out. Hugs!
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May 8th, 2006, 01:13 PM
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#15 |
 Join Date: Dec 2005
Posts: 633
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Re: J has to have her tonsils taken out.
I hope this will help her. Good luck.
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 ~Lara~SAHM to Tal (10-02-2005)
Open Nissen Fundo, Pyloroplasty, G Tube
100% tube fed. Meds: Prilosec
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May 8th, 2006, 03:41 PM
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#16 |
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Community Host
of Home Life and Immune Disorders and Deficiencies
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Join Date: Dec 2003
Location: Somewhere outside of Houston, Texas
Posts: 5,940
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Re: J has to have her tonsils taken out.
Oooooh that is no fun! I hope the removal helps her eating though. Please keep us posted!
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Melody
DW of Doug and SAHM to
Nathan 3/23/05
  Dx with - Reflux, Torticollis, mild Plagiocephaly, Hypotonia, Global Dev Delays, Myopia (nearsightedness).
Has - PT, OT, DT.
Takes - Prevacid, Axid, Albuterol prn, and Miralax.
Nicholas 11/11/02
  Dx with - Reflux, Dumping Syndrome, DGE/Gastroparesis, Reactive Airway Disease, Hypotonia, Transient Hypogammaglobulinemia of Infancy (Primary Immune Deficiency).
Has - Open Nissen Fundo, Pyloroplasty, G button, Pump feeds, Hippotherapy.
Takes - Axid, Reglan, Periactin, Miralax, Nasonex, Flovent, Albuterol prn, Lactobacillus Acidophilus supplements.
Visit Nicholas and Nathan at: http://www3.caringbridge.org/tx/nicholasp/
Community Host of Immune Disorders & Deficiencies and Home Life Forums.
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