Cast picture - Parent-2-Parent & Reflux in Children

AidansMom · May 4th, 2006, 12:43 PM

Forgive the quality. He is so cute, but man oh man I think this is worse than Rotavirus. He can't sleep - so I can't sleep. He has zero balance and weighs a TON now. Having a hard time picking him up since the cast goes almost to his shoulder. *sigh*

http://webpages.charter.net/the_wils...andstripes.jpg

~Lara~ · May 4th, 2006, 12:48 PM

Poor little guy, his cute though!

MomtoAiden · May 4th, 2006, 12:54 PM

AWWWW i love the cast colors. I feel sorry for him tho, especially since he's not able to get much sleep.

kylconkie · May 4th, 2006, 02:50 PM

Poor guy - but he is really cute!

**JacksonsMom** · May 4th, 2006, 03:12 PM

Poor kiddo...and poor mommy! I love his cast though, very cool.

**nicholasmom** · May 4th, 2006, 04:31 PM

Poor guy! What a sweetheart!

**3 special gifts** · May 4th, 2006, 04:37 PM

He is sweet love the cast mind Di

**~ Jennifer ~** · May 4th, 2006, 04:42 PM

How cool.....I hope you both are able to get some sleep soon.

**AggieMom** · May 4th, 2006, 04:43 PM

Cool cast...way better than Nicholas' plain red one. IKWYM about how heavy they are tho. Nicholas weighed a ton for the only time in his life! Hope he starts sleeping soon!

michaelsmum · May 4th, 2006, 06:51 PM

Aww bless him, hoping he's sleeping better soon

Hugs

juliefrog6 · May 4th, 2006, 07:21 PM

Poor guy. I hope he gets to sleeping better soon. I really like the stars.

**jillians_mom** · May 4th, 2006, 07:59 PM

Poor little guy but he looks so darn cute! I really like his cast - very patriotic.

fourgirls1boy4me · May 4th, 2006, 08:16 PM

Awww!!!poor baby and mommy. I love the cast colors though.

**srmina** · May 4th, 2006, 08:34 PM

Very cute! I am sorry it is bothering him so much though.

Jenna M · May 4th, 2006, 08:57 PM

BLess him, he looks so sweet with the colourful cast. I hope he sleeps better soon

**iamblessed** · May 4th, 2006, 09:55 PM

Gosh, I bet it is hard to tote him around like that!But, boy is he a cutie.

**egh02** · May 4th, 2006, 10:35 PM

awwww those are awesome colors

I hope you both get some sleep. Such an angel.

Megan · May 6th, 2006, 06:28 PM

Cute cast! He is so adorable. I hope he gets some sleep soon (you too).

**ChillyJJ** · May 7th, 2006, 09:45 AM

That cast is adorable!! Sorry it's such a bother tho... when does it come off again?

AidansMom · May 7th, 2006, 10:56 AM

Theoretically, a week from Tuesday. But I already lost my appt card. Things were a bit crazy when they handed it to me. Asked DH to call on Friday b/c I started back to work on his off days only. Uhm - didn't happen. Will try on Monday. They will rexray and see if it needs recasting. Hoping not. He is really starting to use that hand some. Sleeping is still hard - and he can't open things or feed himself well or use larger bottles that we worked up to or hold a straw cup by himself - so feeds are taking a big backseat. All in good time . . .

May 4th, 2006, 12:43 PM	#1
AidansMom P2P Supporter: Join Date: Oct 2004 Location: Greenville, SC Posts: 1,029	Cast picture Forgive the quality. He is so cute, but man oh man I think this is worse than Rotavirus. He can't sleep - so I can't sleep. He has zero balance and weighs a TON now. Having a hard time picking him up since the cast goes almost to his shoulder. sigh http://webpages.charter.net/the_wils...andstripes.jpg __________________ Shannon born 04/24/04 with large omphalocele with immediate repair reflux; slow motility; gtube placed 10/19/04 currently on prevacid, reglan, periactin and peptamen jr. formula More on Aidan: http://webpages.charter.net/the_wilsons/

May 4th, 2006, 12:48 PM	#2
~Lara~ Join Date: Dec 2005 Posts: 633	Re: Cast picture Poor little guy, his cute though! __________________ *~Lara~* *SAHM to Tal (10-02-2005)* Open Nissen Fundo, Pyloroplasty, G Tube 100% tube fed. Meds: Prilosec

May 4th, 2006, 12:54 PM	#3
MomtoAiden P2P Supporter: Join Date: Apr 2005 Location: Oklahoma Posts: 4,265	Re: Cast picture AWWWW i love the cast colors. I feel sorry for him tho, especially since he's not able to get much sleep. __________________ Jamie Mother to: Aiden born 02/23/04: Primary Dx: Pierre Robin Syndrome PEG tube 04/04-10/04 & G-tube 10/04 to present Small Slideshow of Aiden Our Gallery

May 4th, 2006, 02:50 PM	#4
kylconkie P2P Supporter: Join Date: Nov 2004 Posts: 1,071	Re: Cast picture Poor guy - but he is really cute!

May 4th, 2006, 03:12 PM	#5
JacksonsMom Community Host of Adaptive Equipment P2P Supporter: Join Date: Feb 2005 Location: Chicago, IL Posts: 7,151	Re: Cast picture Poor kiddo...and poor mommy! I love his cast though, very cool. __________________ Chaney Mom to 5/31/03 Vaccine-induced encephalopathy since 12/9/04 severe GERD, GJ-tube fed due to dysphagia and sensory aversion, CP (spastic quadriplegia), seizures meds: keppra, robinul, miralax, zantac, neurontin, zelnorm www.jacksonpresleydiamond.com




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May 4th, 2006, 04:31 PM	#6
nicholasmom Community Host of Immune Disorders & Deficiencies, Medical Matters, Preschool Years, and the Elementary Years forums. P2P Supporter: Join Date: Nov 2003 Location: Nebraska Posts: 9,227	Re: Cast picture Poor guy! What a sweetheart! __________________ Amy, Mom to Kayla 1/17/96, Epilepsy takes Keppra and Relpax Noah 2/1/99, Mild Reflux takes Prevacid and Nasonex Nicholas 12/21/02 , Common Variable Immune Deficiency (CVID), Asthma, Reflux, takes D'Allergy Jr, Nasacort AQ, Bactroban Nasal spray and Miralax daily and other meds prn and gets IVIG every two weeks SubQ at home Visit Nick's website

May 4th, 2006, 04:37 PM	#7
3 special gifts Community Host of the Adaptive Equpment forum. Join Date: Jun 2004 Location: united kingdom Posts: 1,320	Re: Cast picture He is sweet love the cast mind Di __________________ Mum to 3 gorgous kids Daniel 17 years old cerebal palsy,epilepsy,scoliosis surgically controlled,hip dislocation surgically repaired ,severe reflux nissen fundoplication 2003 re do 2004 ,Barrets osophegous numerous ongoing lazer surgery to eradicate it,amt mini button for top up feeds but eats orally too meds current losec,baclofen,clonazepan,sabrill,gaviscon, cyclazine, lactlose. Christopher 11 years old and Lauren 9 years old , wife to Steve for 21 years

May 4th, 2006, 04:42 PM	#8
~ Jennifer ~ Host Coordinator & Community Manager Community Host of the Towne Centre Join Date: Nov 2003 Posts: 12,545	Re: Cast picture How cool.....I hope you both are able to get some sleep soon. __________________ Jennifer... Mom to Tyler (10yo Refluxer & DGE) Prevacid, Zelnorm, Miralax, Singulair, Allegra, Nasonex, and weekly Allergy shots Community Manager Host Coordinator & Community Host Towne Centre If you need assistance,help with the forums,or have questions please contact the community care team. communitycare@parent-2-parent.com

May 4th, 2006, 04:43 PM	#9
AggieMom Community Host of Home Life and Immune Disorders and Deficiencies P2P Supporter: Join Date: Dec 2003 Location: Somewhere outside of Houston, Texas Posts: 5,938	Re: Cast picture Cool cast...way better than Nicholas' plain red one. IKWYM about how heavy they are tho. Nicholas weighed a ton for the only time in his life! Hope he starts sleeping soon! __________________ Melody DW of Doug and SAHM to Nathan 3/23/05 Dx with - Reflux, Torticollis, mild Plagiocephaly, Hypotonia, Global Dev Delays, Myopia (nearsightedness). Has - PT, OT, DT. Takes - Prevacid, Axid, Albuterol prn, and Miralax. Nicholas 11/11/02 Dx with - Reflux, Dumping Syndrome, DGE/Gastroparesis, Reactive Airway Disease, Hypotonia, Transient Hypogammaglobulinemia of Infancy (Primary Immune Deficiency). Has - Open Nissen Fundo, Pyloroplasty, G button, Pump feeds, Hippotherapy. Takes - Axid, Reglan, Periactin, Miralax, Nasonex, Flovent, Albuterol prn, Lactobacillus Acidophilus supplements. Visit Nicholas and Nathan at: http://www3.caringbridge.org/tx/nicholasp/ Community Host of Immune Disorders & Deficiencies and Home Life Forums.

May 4th, 2006, 06:51 PM	#10
michaelsmum Join Date: Feb 2006 Location: Herts, UK Posts: 65	Re: Cast picture Aww bless him, hoping he's sleeping better soon Hugs __________________ Debby Mum to Michael!! 24+5 Nov 99, Dysphagia, Pharengyl stage swallow impairment, Bulbar Palsy, Dysfluency, G-Peg fed, Hypotonia, Ligmentus Laxity. CLD/BPD, Autism and Learning Difficulties. Michael's website

May 4th, 2006, 07:21 PM	#11
juliefrog6 Join Date: Aug 2004 Location: Washington Posts: 2,259	Re: Cast picture Poor guy. I hope he gets to sleeping better soon. I really like the stars. __________________ Julie Mom to Nathan 4/7/00 (Intractable epilepsy, CP, SOD/ACC, GERD, polycystic kidney, ostoepenia,chronic ear infections) ketogenic diet(weaning off after three years ), vegal nerve stimulator & G-J tube Amber 9/6/01 red headed princess Jared 6/10/05 Bundle of joy and happy puker

May 4th, 2006, 07:59 PM	#12
jillians_mom Community Care Team Coordinator Join Date: Jun 2004 Posts: 1,901	Re: Cast picture Poor little guy but he looks so darn cute! I really like his cast - very patriotic. __________________

May 4th, 2006, 08:16 PM	#13
fourgirls1boy4me P2P Supporter: Join Date: May 2004 Location: S. California Posts: 1,872	Re: Cast picture Awww!!!poor baby and mommy. I love the cast colors though. __________________

May 4th, 2006, 08:34 PM	#14
srmina Community Host of Tube Feeding Issues and Adaptive Equipment P2P Supporter: Join Date: Apr 2004 Location: Chicago Posts: 11,054	Re: Cast picture Very cute! I am sorry it is bothering him so much though. __________________ Susan, mom of Sameer , 3/4/05, happy former spitter Karuna , 7/6/03, G-button Main Diagnoses: Hypoxic Ischemic Encephalopathy, Cerebral Palsy, Severe GERD and associated neurogastro issues, Seizure Disorder (type undiagnosed), Laryngomalacia, Vision Impairment Current Meds: Prevacid in Caracream, Levsin, Zantac, Lactulose, Keppra, Neurontin, Zanaflex, Botox Injections, Off Klonopin for now! Visit Karuna at http://www.karuna.agrawalkids.com

May 4th, 2006, 08:57 PM	#15
Jenna M P2P Supporter: Join Date: Jun 2005 Location: Ontario, Canada Posts: 4,469	Re: Cast picture BLess him, he looks so sweet with the colourful cast. I hope he sleeps better soon __________________ WWW.caringbridge.org/visit/amberlynnmooney Jenna 28, Stickler Syndrome type III & Michael 24. Blessed parents of AmberLynn (Bryn) (22mos)16/04/04 Nonsense Mutation of gene 6P21.3 resulting in Stickler Syndrome with Pierre Robin Sequence. Aidin 5 Nonsense Mutation of gene 6P21.3 resulting in Stickler Syndrome Madylan 6 & Adam, 10. Margaret Adarah Rose ~*Passed~*

May 4th, 2006, 09:55 PM	#16
iamblessed Community Host of Children's Medical Matters P2P Supporter: Join Date: Jul 2004 Location: In a world all my own! Posts: 3,521	Re: Cast picture Gosh, I bet it is hard to tote him around like that!But, boy is he a cutie. __________________ NOAH (10/25/99)- 35 week preemie due to HELLP syndrome; asthma, reflux, congenital bronchial stenosis; double aortic arch (surgically repaired 12/1/04), IgG deficiency (outgrown!), hiatal hernia, possible seizure disorder undiagnosed; extrinsic esophageal compression, causing dysphagia and oral aversions: all around great kid and destined to be a 1st round draft pick! PRINCESS ABIGAIL (10/17/01)- chronic sinusitis, chronic ear infections, enlarged adenoids & tonsils (revised & removed 12/16/05), ecsema, asthma, chronic abdominal pain and re-diagnosed refluxer: Noah's biggest fan and the best little sister around! Noah's Website

May 4th, 2006, 10:35 PM	#17
egh02 Community Host of the Towne Centre and the Welcoming Corner. P2P Supporter: Join Date: Jan 2005 Location: Kansas Posts: 4,111	Re: Cast picture awwww those are awesome colors I hope you both get some sleep. Such an angel. __________________ Liz- Wife to Big Joe ( served us all in Iraq April 2003- April 2004 and Jan 2005 to Feb 2006 ) Little Joe (7/7/03). Severe reflux, gastroparesis with other motility issues, possible protein allergy. GJ tube placement (11/03) first fundo (1/04) pyloroplasty (1/04) second fundo (3/05). 100% tube fed takes prevacid, EES, adarax, periactin, bentyl, zelnorm, zyrtec, and miralax as needed. Visit Little Joe at: http://www2.caringbridge.org/ks/joe

May 6th, 2006, 06:28 PM	#18
Megan P2P Supporter: Join Date: Feb 2004 Location: Pennsylvania Posts: 1,389	Re: Cast picture Cute cast! He is so adorable. I hope he gets some sleep soon (you too). __________________ Megan Wife to Chris since 8/8/98 Mom to Maeve: 3/13/03 Complete AV Canal Heart Defect , Ptosis, Duane's Syndrome, Bilateral Postaxial Polydactyly (all surgically corrected) GERD and DGE Former NG then G-J tuber, now with MICKey G button Meds: Digoxin, Enalapril and Periactin. No more reflux meds! Jack: 5/20/00, Loving kindergarten http://mysite.verizon.net/maevecatherine (new site, still under construction) or http://www.carepages.com Carepage Name: BraveMaeve

May 7th, 2006, 09:45 AM	#19
ChillyJJ Community Host of Crafty Creations and Behind Closed Doors Join Date: Nov 2003 Location: Ontario, Canada Posts: 7,395	Re: Cast picture That cast is adorable!! Sorry it's such a bother tho... when does it come off again? __________________ Jennifer B - SAHM to Michael (7/18/97) and Connor (3/22/01) "You may house their bodies but not their souls, For their souls dwell in the house of tomorrow, which you cannot visit, not even in your dreams." - 'The Prophet' by Kahlil Gibran Come see what's new in the Crafty Creations forum!! For more adult conversations come see what's *Behind Closed Doors* (email comments@parent-2-parent.com for password)

May 7th, 2006, 10:56 AM	#20
AidansMom P2P Supporter: Join Date: Oct 2004 Location: Greenville, SC Posts: 1,029	Re: Cast picture Theoretically, a week from Tuesday. But I already lost my appt card. Things were a bit crazy when they handed it to me. Asked DH to call on Friday b/c I started back to work on his off days only. Uhm - didn't happen. Will try on Monday. They will rexray and see if it needs recasting. Hoping not. He is really starting to use that hand some. Sleeping is still hard - and he can't open things or feed himself well or use larger bottles that we worked up to or hold a straw cup by himself - so feeds are taking a big backseat. All in good time . . .

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