Maeve's post-op visit #1 - Parent-2-Parent & Reflux in Children

Megan · May 1st, 2006, 12:39 PM

We went back to CHOP this morning for the first post op check on Maeve's eye. Everything looks good. He commented that it looks very swollen b/c they removed a lot of scarring from the last time they did this surgery. She did have some scarring on her eyelid, but you had to get pretty close to see it. So, I 'll be curious to see what it will look like when it heals up. I can already tell that it's open wider than before. She got the okay to return to school tomorrow--that means Mommmy has to go back to work

! We have to go back again next Monday (nothing like making a 45 min. drive that takes about 60 min. in rush hour for a 10 minute appointment

).

**~ Jennifer ~** · May 1st, 2006, 01:24 PM

I'm glad to hear that all looks good. Please keep us posted.

**merrifay** · May 1st, 2006, 02:20 PM

I'm glad everything looks good, I hope it continues to heal well with no problems.

**srmina** · May 1st, 2006, 08:39 PM

I'm glad everything looked good and you are already seeing improvement.

**JacksonsMom** · May 1st, 2006, 09:34 PM

Glad things are going well...aside from the traffic.

**iamblessed** · May 1st, 2006, 10:25 PM

I am glad to hear that all looks well and she is healing nicely. I know what you mean about driving for nothing- it seems like we spend more time in the car on appointment days than anything else! I hope her return to school (and yours

) goes well.

**ChillyJJ** · May 3rd, 2006, 09:11 AM

I just looked at her surgery thread... can you post a pic of her now? I'd like to see the change from pre to post with no swelling. I'm sure she looks great tho...

**nicholasmom** · May 3rd, 2006, 09:27 AM

I am glad that everything is healing well! I can't wait to see updated pics of our cutie!!!

Megan · May 3rd, 2006, 04:47 PM

Thanks everyone! I've been meaning to take another pic, I'll have to try to get that done tonight. It is looking much better.

**ChillyJJ** · May 3rd, 2006, 09:36 PM

Oh I can't wait to see her!!

May 1st, 2006, 01:24 PM	#2
~ Jennifer ~ Host Coordinator & Community Manager Community Host of the Towne Centre Join Date: Nov 2003 Posts: 12,545	Re: Maeve's post-op visit #1 I'm glad to hear that all looks good. Please keep us posted. __________________ Jennifer... Mom to Tyler (10yo Refluxer & DGE) Prevacid, Zelnorm, Miralax, Singulair, Allegra, Nasonex, and weekly Allergy shots Community Manager Host Coordinator & Community Host Towne Centre If you need assistance,help with the forums,or have questions please contact the community care team. communitycare@parent-2-parent.com

May 1st, 2006, 02:20 PM	#3
merrifay Community Host Community Host of Children's Respiratory Disorders P2P Supporter: Join Date: Oct 2004 Location: Corpus Christi,Texas Posts: 1,907	Re: Maeve's post-op visit #1 I'm glad everything looks good, I hope it continues to heal well with no problems. __________________ Mary, wife of Corbin mommy to: Caedon, "Buddy," healthy, my little man, 10-17-00 Caeley, "Precious," my princess, 12-01-03 rt. CDH, tracheobronchomalacia, trach, vent, reflux, g-j tube...meds: reglan, prilosec, aldactone, Diuril, lasix, albuterol puffs, flovent twice daily, feeds: 30 cal Elicare: am 55ml/hr, pm 25ml/hr, visit Caeley at: www.caringbridge.org/tx/caeley "Now unto Him that is able to do exceeding abundantly above all that we ask or think, according to the power that worketh in us," Eph. 3:20

May 1st, 2006, 08:39 PM	#4
srmina Community Host of Tube Feeding Issues and Adaptive Equipment P2P Supporter: Join Date: Apr 2004 Location: Chicago Posts: 11,054	Re: Maeve's post-op visit #1 I'm glad everything looked good and you are already seeing improvement. __________________ Susan, mom of Sameer , 3/4/05, happy former spitter Karuna , 7/6/03, G-button Main Diagnoses: Hypoxic Ischemic Encephalopathy, Cerebral Palsy, Severe GERD and associated neurogastro issues, Seizure Disorder (type undiagnosed), Laryngomalacia, Vision Impairment Current Meds: Prevacid in Caracream, Levsin, Zantac, Lactulose, Keppra, Neurontin, Zanaflex, Botox Injections, Off Klonopin for now! Visit Karuna at http://www.karuna.agrawalkids.com

May 1st, 2006, 09:34 PM	#5
JacksonsMom Community Host of Adaptive Equipment P2P Supporter: Join Date: Feb 2005 Location: Chicago, IL Posts: 7,151	Re: Maeve's post-op visit #1 Glad things are going well...aside from the traffic. __________________ Chaney Mom to 5/31/03 Vaccine-induced encephalopathy since 12/9/04 severe GERD, GJ-tube fed due to dysphagia and sensory aversion, CP (spastic quadriplegia), seizures meds: keppra, robinul, miralax, zantac, neurontin, zelnorm www.jacksonpresleydiamond.com

May 1st, 2006, 10:25 PM	#6
iamblessed Community Host of Children's Medical Matters P2P Supporter: Join Date: Jul 2004 Location: In a world all my own! Posts: 3,521	Re: Maeve's post-op visit #1 I am glad to hear that all looks well and she is healing nicely. I know what you mean about driving for nothing- it seems like we spend more time in the car on appointment days than anything else! I hope her return to school (and yours ) goes well. __________________ NOAH (10/25/99)- 35 week preemie due to HELLP syndrome; asthma, reflux, congenital bronchial stenosis; double aortic arch (surgically repaired 12/1/04), IgG deficiency (outgrown!), hiatal hernia, possible seizure disorder undiagnosed; extrinsic esophageal compression, causing dysphagia and oral aversions: all around great kid and destined to be a 1st round draft pick! PRINCESS ABIGAIL (10/17/01)- chronic sinusitis, chronic ear infections, enlarged adenoids & tonsils (revised & removed 12/16/05), ecsema, asthma, chronic abdominal pain and re-diagnosed refluxer: Noah's biggest fan and the best little sister around! Noah's Website




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May 1st, 2006, 12:39 PM	#1
Megan P2P Supporter: Join Date: Feb 2004 Location: Pennsylvania Posts: 1,389	Maeve's post-op visit #1 We went back to CHOP this morning for the first post op check on Maeve's eye. Everything looks good. He commented that it looks very swollen b/c they removed a lot of scarring from the last time they did this surgery. She did have some scarring on her eyelid, but you had to get pretty close to see it. So, I 'll be curious to see what it will look like when it heals up. I can already tell that it's open wider than before. She got the okay to return to school tomorrow--that means Mommmy has to go back to work! We have to go back again next Monday (nothing like making a 45 min. drive that takes about 60 min. in rush hour for a 10 minute appointment). __________________ Megan Wife to Chris since 8/8/98 Mom to Maeve: 3/13/03 Complete AV Canal Heart Defect , Ptosis, Duane's Syndrome, Bilateral Postaxial Polydactyly (all surgically corrected) GERD and DGE Former NG then G-J tuber, now with MICKey G button Meds: Digoxin, Enalapril and Periactin. No more reflux meds! Jack: 5/20/00, Loving kindergarten http://mysite.verizon.net/maevecatherine (new site, still under construction) or http://www.carepages.com Carepage Name: BraveMaeve

May 3rd, 2006, 09:11 AM	#7
ChillyJJ Community Host of Crafty Creations and Behind Closed Doors Join Date: Nov 2003 Location: Ontario, Canada Posts: 7,395	Re: Maeve's post-op visit #1 I just looked at her surgery thread... can you post a pic of her now? I'd like to see the change from pre to post with no swelling. I'm sure she looks great tho... __________________ Jennifer B - SAHM to Michael (7/18/97) and Connor (3/22/01) "You may house their bodies but not their souls, For their souls dwell in the house of tomorrow, which you cannot visit, not even in your dreams." - 'The Prophet' by Kahlil Gibran Come see what's new in the Crafty Creations forum!! For more adult conversations come see what's *Behind Closed Doors* (email comments@parent-2-parent.com for password)

May 3rd, 2006, 09:27 AM	#8
nicholasmom Community Host of Immune Disorders & Deficiencies, Medical Matters, Preschool Years, and the Elementary Years forums. P2P Supporter: Join Date: Nov 2003 Location: Nebraska Posts: 9,227	Re: Maeve's post-op visit #1 I am glad that everything is healing well! I can't wait to see updated pics of our cutie!!! __________________ Amy, Mom to Kayla 1/17/96, Epilepsy takes Keppra and Relpax Noah 2/1/99, Mild Reflux takes Prevacid and Nasonex Nicholas 12/21/02 , Common Variable Immune Deficiency (CVID), Asthma, Reflux, takes D'Allergy Jr, Nasacort AQ, Bactroban Nasal spray and Miralax daily and other meds prn and gets IVIG every two weeks SubQ at home Visit Nick's website

May 3rd, 2006, 04:47 PM	#9
Megan P2P Supporter: Join Date: Feb 2004 Location: Pennsylvania Posts: 1,389	Re: Maeve's post-op visit #1 Thanks everyone! I've been meaning to take another pic, I'll have to try to get that done tonight. It is looking much better.

May 3rd, 2006, 09:36 PM	#10
ChillyJJ Community Host of Crafty Creations and Behind Closed Doors Join Date: Nov 2003 Location: Ontario, Canada Posts: 7,395	Re: Maeve's post-op visit #1 Oh I can't wait to see her!!

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